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“The Entertainment Book is such a great way to try new restaurants. It’s also a great opportunity to help community organisations. – Ali M”
What is ME/CFS?
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a serious, complex, disabling illness which causes incapacitating fatigue, pain, sleep dysfunction, cognitive impairment and other neurological, autonomic and immune symptoms.
It is like having a severe case of glandular fever and the flu and having run a marathon all at the same time which goes on for years. The hall-mark feature of the illness is post-exertional malaise (PEM) which means that symptoms are exacerbated by physical or cognitive effort. This is unlike healthy fatigue which can be pushed through and reversed by sleep. For people with ME/CFS everyday tasks like showering, cleaning teeth, talking or reading can make a person more unwell.
The name ‘Chronic Fatigue Syndrome’ gives people the idea that sufferers have ‘chronic fatigue’ and are just tired and so the illness is often dismissed and the public is largely unaware of the prevalence and the significant impact this illness has on the lives of those with ME/CFS and their families.
“…patients with this illness experience a level of disability that’s equal to that of patients with late-stage AIDS, patients undergoing chemotherapy, or patients with multiple sclerosis.”
Professor Nancy Klimas MD, AIDS and ME/CFS Specialist.